Osteonecrosis - A bone disease that few have heard of. Some where between 10,000 and 20,000 people are diagnosed with this disease each year in the United States alone. Yet, with the population of the United States of approximately 274 million, these people are being lost in the crowd. They would like to believe that someone understands and cares. We Do! The National Osteonecrosis Foundation is made up of a group of patients, physicians and others who want to see the end of this disease.
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Today we are working at the frontier between what we know and what we need to know about osteonecrosis and Perthes' Disease. Osteonecrosis means death of bone. This results from a wide variety of conditions, many poorly understood, which lead to major joint damage in children and young adults. Our goal is to provide much needed funding for medical research and education of patients, physicians, and other health professionals. To all participating physicians, we offer routine informational updates and patient educational support.
Although the disease called osteonecrosis was discovered in Egyptian mummies, there is a lack of information available in understanding and treating this disease. The word osteonecrosis comes from a combination of two words which mean that part of the bone is no longer alive and cannot regenerate itself due to a lack of blood supply.
Since 1996, when we started with 6 physicians and a handful of patients and other interested parties, our membership has increased steadily every year. We have received support from 6 major corporations. Harlan Amstutz, M.D. John A. Herring, M.D. David S. Hungerford, M.D. Lynne C. Jones, Ph. D. Harry K.W. Kim, M.D.
We have selected several websites that we believe would be of interest to patients with osteonecrosis or Perthes' disease. If you would like to add your name to our list, please contact us by e-mail. The mission of this center is to conduct multi-center research studies in order to increase our knowledge concerning the development, diagnosis, and treatment of this disease.
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